KITKABOO
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Good news no tumour, bad news the operation went horribly wrong

Friday, February 26, 2021

I had my tumour removed finally in December 2020 and heard the words 'you're cured' when I woke up post surgery. The tumour was benign but affected every cell in the body due to it's position. I had hyperparathyroidism with over 200 symptoms and constant bone pain so when they said I'm cured I was so happy.

Two weeks later after feeling so unwell I had blood tests & my GP knocked on my door at 1am and asked me to go to A & E as my bloods were dangerously low and said I could have a heart attack or seizure at any time. Well this started 2 months of hospital visits every 2 days including Christmas day as I couldn't maintain safe levels within my blood and I was diagnosed with hypoparathyroidism as it transpires that the surgeon who failed to remove the tumour actually removed healthy glands in error and I am now left with a lifetime of taking supplements every 2 hours in order to maintain barely 'normal' levels so I would have been better off keeping the tumour.

I still know how incredibly lucky I am to have an amazing medical team taking care of me and incredibly lucky we have the NHS. I am now adjusting to the new lifestyle although I am fed up at times and am only 3 months in so I can't imagine another potentially 30 years of this as there is no cure. I shouldn't whine as I am luckier than many others.

I am now taking it a day at a time, as I still have gastroparesis I am on mainly shakes still as food takes 4 days to work it's way through. I have to 'eat' every 2 hours as I can't take the supplements on an empty stomach so I have a quarter of a protein shake every 2 hours!

I am also lucky that I can't eat takeaways anymore as I used to eat my weight in those buggers! I am happy with the side effects of the gastroparesis which is the inability to eat although the mind is willing the body is not!

I still utilise my Sparkpeople account as I love the community spirit
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  • 1CRAZYDOG
    OH my! Just no words! HUGS and hope that you can indeed adjust to this new life.
    51 days ago
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