MARYJEANSL
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UTI and Other Woes

Sunday, November 17, 2019

So, Danny started a new cycle of chemo a week ago. Since it was a weekend, he had to be admitted to the inpatient ward. He chooses to do that rather than get the chemo M-F, because he misses less school. Since Monday was a government holiday (but *not,* unfortunately, a day off school), he had to stay over Sunday night and get a chemo treatment Monday morning. The nurse that day was awful, and slow, and he ended up missing the whole school day unnecessarily. But I digress.

Tuesday and Wednesday, he went to school for a half day, and then got chemo in the afternoons. Wednesday afternoon we went to the clinic around 1:30, as usual. When I walked in, I was greeted by not one, but two oncologists, which I knew meant not good news. Turned out he had a UTI. Not just any old UTI, of course. My kids never have 'just any old' ailment, of any kind. It's always bad or very bad. His urine culture showed two different types of nasty bacteria, both resistant to most antibiotics. However, one antibiotic was available that would take care of both types of bacteria. That was the good news. The bad news was that this particular antibiotic is only available in IV form. He had to be admitted at least overnight to start the IV drug and see how he did.

Then he went and spiked a fever, which meant at least another night. (You have to be at least 24 hours fever free to get discharged.)

We had at that point two bad options. First was to keep him in the hospital for the ten days it would take to treat the infection. Not really an option at all, since he has already missed way too much school. Second option - get home health involved, and learn to give him IVs at home. Seemed like a much better option, until I found out the costs involved. $600 co-pay, or deductible, or whatever. Six hundred dollars!!!!!!!!! When keeping him in the hospital would be free. So unfair.

But he wants to graduate with his class, so there was really no choice. He got discharged very early Friday morning, and I took him to school. Meanwhile, the doctors were getting the home health set up. Of course, we had to clean the house before the home health nurse came, and the pharmacy delivered the drug and equipment an hour and a half later than they had promised me (and the nurse). He cooled his heels, apparently at a nearby Harley Davidson store, and I frantically cleaned the house. Not trying for house beautiful, just for house not terrible. But because of the delay, I wasn't able to go to a fun event that night.

And now I am an official IV-giving momcologist. Fun, fun. Actually, it's pretty easy, but nonetheless a pain in the rear. It's going to be a long (what's left of) ten days.

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  • BLITZEN44
    Momcologist- love it! Sorry Danny is sick though. And that's so crazy that they are charging you $600 to take care of your own son at home but it's free for him to stay in the hospital. I too strive for house not terrible from time to time. On RARE occasions I succeed. Right now the front of our white house has started to grow something not white on it. I pointed it out to DH and he said he "might try" to get it off this week with the pressure washer. Not real promising, but "might" be better than nothing I guess. So as it stands, it's house terrible right now.

    Sending get well wishes for Danny and hugs for you!
    12 days ago
  • JANIEWWJD
    I continue to pray for you and Danny daily!!! emoticon God bless you both!!!
    18 days ago
  • SLIMMERJESSE
    Keeping you and your son in my prayers. Big hug.
    19 days ago
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